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SM Voices

The latest insights and perspectives from people who have lived and struggled with SM

  • Tara Keith My care can be costly. I just learned there are grants to help

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  • Tara Keith My experience at Rare Disease Week on Capitol Hill

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  • Kim Lepine Self-advocacy in survival mode: My journey to an SM diagnosis

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  • Tara Keith My sleepless nights with indolent SM

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  • Tara Keith Why dental health is so important in systemic mastocytosis

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  • Tara Keith Coping with an unexpected change in medication

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  • Tara Keith Rare disease advocacy is taking me to Washington

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Rare Disease Companion (RDC) is a network of news and information websites that supports people living with rare diseases. Through accurate, authentic, and compassionate news coverage, feature-length articles, and patient-friendly educational material, RDC provides insights into living with rare diseases at every point along the patient journey.

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