From the ambassador

Becoming the guide I wish I’d had on my journey

I had no one to point me in the right direction, and I suffered the consequences. Now I'm trying to ease the rare disease journey for others.

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Living with mastocytosis

What people with SM should know about epinephrine

Coughing, shortness of breath and wheezing are all respiratory symptoms that can be a sign of SM.

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The latest research

DXA bone scans may miss fracture risk in SM

A scan called DXA used to measure bone mineral density does not always correctly show the risk of fractures in SM.

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A companion for the SM journey

The information, insights and support you need every step of the way

Find what you are looking for no matter where you are on the SM journey. Get started today.

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