Rare Patient Voice rewards patients and caregivers for sharing their insights
Since its establishment, RPV has recruited for thousands of studies while rewarding patients and caregivers with more than $15 million for their participation.
Since its establishment, RPV has recruited for thousands of studies while rewarding patients and caregivers with more than $15 million for their participation.
In some cases, mast cells proliferate and infiltrate organs in a cancer-like manner.
When mast cells infiltrate the gut wall, they can release chemicals that can harm.
You’re not obliged to declare your SM diagnosis at work, but it can make it easier to explain why you need to avoid symptom triggers.
A clinical trial can offer hope when current treatments are less promising.
Before making any changes, always discuss swallowing difficulties with your doctor.
Listen to your body: Physical exertion increases your internal temperature, which can stimulate mast cell activity.
Spacing out your preparation can help make the process feel less overwhelming.
The key difference between MCAS and SM is in the number of mast cells and how they act.
While the majority of patients will have a normal life expectancy, that isn’t true for all.