Features

KIT D816V mutation testing is simple – all it takes is a blood draw.

When it appears in adulthood, there’s a 90% chance that cutaneous mastocytosis will develop into SM.

Don’t be discouraged if you’re denied at first; roughly 70% of applicants are, and you can appeal the decision.

Be open about what helps you feel better and what to do in an emergency.

Always check the specific storage instructions for your medication.

From mast cell activity near the nervous system to the stress of living with a chronic disease, SM impacts the brain in many ways.

Whether or not soy triggers symptoms depends less on soy itself and more on how it’s prepared.

Roughly 50% of people with SM have bone involvement.

There’s no “right” way to process the news.

From a hot bath to a stuffy sweater, heat intolerance can appear in many parts of daily life.