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The SM Journey: Living

Find out what’s new and what’s next in treatment options for SM.

Diagnosis Seekers
Newly Diagnosed
On Your Way
Long-Term Living

Science How ice baths help my indolent systemic mastocytosis symptoms
Advocacy How to care for a loved one with systemic mastocytosis
Advocacy How ISM affected my pregnancies and births
Novel study evaluates systemic mastocytosis’ effect on patients, providers
Science My 25+ year journey to diagnosis of indolent systemic mastocytosis
Treatments SM therapy shows promise in phase 2 trial
Pregnancy and systemic mastocytosis: What to expect

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Rare Disease Companion (RDC) is a network of news and information websites that supports people living with rare diseases. Through accurate, authentic, and compassionate news coverage, feature-length articles, and patient-friendly educational material, RDC provides insights into living with rare diseases at every point along the patient journey.

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