Features

Landmarks worldwide will light up on Rare Disease Day.

One in five patients with SM have the SM-AHN subtype.

Working with a dietician means you’re no longer navigating food choices alone.

Many find that specific types of processed foods trigger their symptoms, but what triggers symptoms in one patient might be completely fine for another.

Given that MCL is a rare subtype of an already rare disease, there is much about it that is poorly understood.

Since its establishment, RPV has recruited for thousands of studies while rewarding patients and caregivers with more than $15 million for their participation.

In some cases, mast cells proliferate and infiltrate organs in a cancer-like manner.

When mast cells infiltrate the gut wall, they can release chemicals that can harm. 

You’re not obliged to declare your SM diagnosis at work, but it can make it easier to explain why you need to avoid symptom triggers.

A clinical trial can offer hope when current treatments are less promising.