How ice baths help my indolent systemic mastocytosis symptoms
I have lived with extreme pain for the last 24 years because of indolent systemic mastocytosis (ISM), but ice baths help me find relief.
I have lived with extreme pain for the last 24 years because of indolent systemic mastocytosis (ISM), but ice baths help me find relief.
Living with a rare disease is hard enough without the mental anguish that comes with it, but what’s most important is that I keep moving forward.
Living with PTSD due to a rare disease, systemic mastocytosis, has been challenging, but over the years, I’ve learned ways to cope.
After years of living with undiagnosed ISM and osteoporosis, I often wonder how different my life may have been, had I been diagnosed sooner.
I experienced one complication after another during my last two pregnancies, which may have been due to my indolent systemic mastocytosis.
I have indolent systemic mastocytosis (ISM) and cutaneous mastocytosis (CM), but my diagnoses do not define me.