Companion Ambassador
Tara Keith
Tara Keith is a wife, mother, and grandmother who lives life to the fullest. She was diagnosed with indolent systemic mastocytosis (SM) in her late 20s, but only after living with the disease undiagnosed for 10 years. It wasn’t until the cutaneous mastocytosis appeared in 1999 that she was sent for a bone marrow biopsy. “My entire life was a struggle with no information on mastocytosis available,” she said. “I have a story to tell and I’m looking forward to sharing my journey with all of you.” She can be reached at tara_milby@yahoo.com.
From the Ambassador
-
-
My care can be costly. I just learned there are grants to help
-
My experience at Rare Disease Week on Capitol Hill
-
My sleepless nights with indolent SM
-
Why dental health is so important in systemic mastocytosis
-
Coping with an unexpected change in medication
-
Rare disease advocacy is taking me to Washington