Companion Ambassador
Tara Keith
Tara Keith is a wife, mother, and grandmother who lives life to the fullest. She was diagnosed with indolent systemic mastocytosis (SM) in her late 20s, but only after living with the disease undiagnosed for 10 years. It wasn’t until the cutaneous mastocytosis appeared in 1999 that she was sent for a bone marrow biopsy. “My entire life was a struggle with no information on mastocytosis available,” she said. “I have a story to tell and I’m looking forward to sharing my journey with all of you.” She can be reached at [email protected].
From the Ambassador
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Medical travel isn’t cheap. I just learned I don’t need to bear the burden alone
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Have I paid someone else’s medical bill without knowing?
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Losing my companion dog, and part of myself
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Life at the intersection of treatment, side effects and isolation
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Bidding a tearful goodbye to a life-changing clinical trial
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Becoming the guide I wish I’d had on my rare disease journey
