
Companion Ambassador
Tara Keith
Tara Keith is a wife, mother, and grandmother who lives life to the fullest. She was diagnosed with indolent systemic mastocytosis (SM) in her late 20s, but only after living with the disease undiagnosed for 10 years. It wasn’t until the cutaneous mastocytosis appeared in 1999 that she was sent for a bone marrow biopsy. “My entire life was a struggle with no information on mastocytosis available,” she said. “I have a story to tell and I’m looking forward to sharing my journey with all of you.” She can be reached at tara_milby@yahoo.com.
From the Ambassador
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How ice baths help my indolent systemic mastocytosis symptoms
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Coping with low self-esteem caused by my rare disease
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Living with PTSD caused by my rare disease
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What it’s like to live with systemic mastocytosis and osteoporosis
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How ISM affected my pregnancies and births
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My 25+ year journey to diagnosis of indolent systemic mastocytosis