Companion Ambassador
Tara Keith
Tara Keith is a wife, mother, and grandmother who lives life to the fullest. She was diagnosed with indolent systemic mastocytosis (SM) in her late 20s, but only after living with the disease undiagnosed for 10 years. It wasn’t until the cutaneous mastocytosis appeared in 1999 that she was sent for a bone marrow biopsy. “My entire life was a struggle with no information on mastocytosis available,” she said. “I have a story to tell and I’m looking forward to sharing my journey with all of you.” She can be reached at tara_milby@yahoo.com.
From the Ambassador
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Facing a shortage of medication when you need it most
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I didn’t know SM could cause osteoporosis. Neither did my doctors
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I worked hard for years with SM – until I couldn’t any more
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Life is better with connection: What I’ve learned writing about SM
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Patients with SM can’t donate blood or organs, but I can still help
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Don’t tell me what I can’t do with SM. It’s just different now
