Larry Luxner

All articles by Larry Luxner

• Rare Patient Voice rewards patients and caregivers for sharing their insights

  Since its establishment, RPV has recruited for thousands of studies while rewarding patients and caregivers with more than $15 million for their participation.

• Rare disease advocate Dan Lier inspires others with his ‘Rare Disease Playbook’

  Motivational speaker and advocate Dan Lier discusses his work helping those with rare diseases find new mindsets after diagnosis.

• Novel study evaluates systemic mastocytosis’ effect on patients, providers

  Blueprint Medicines released results from the largest-ever European study evaluating the effect of systemic mastocytosis on patients’ lives.