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The SM Journey: Living

Find out what’s new and what’s next in treatment options for SM.

Diagnosis Seekers
Newly Diagnosed
On Your Way
Long-Term Living

Treatments Antisense therapy targeting KIT mutations shows potential as SM treatment
Advocacy Traveling with systemic mastocytosis: My tried-and-true tricks
Treatments Living with systemic mastocytosis: Tips for managing skin lesions
Advocacy Rare disease advocate Dan Lier inspires others with his ‘Rare Disease Playbook’
Science Vitamin supplements may help relieve chronic itch, but more studies are needed
Science Finding new hope: My trip to Boston to attend the WODC 2025
Science COVID-19 booster triggers severe immune response in man with SM

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Rare Disease Companion (RDC) is a network of news and information websites that supports people living with rare diseases. Through accurate, authentic, and compassionate news coverage, feature-length articles, and patient-friendly educational material, RDC provides insights into living with rare diseases at every point along the patient journey.

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