Systemic mastocytosis: A confusing cancer diagnosis
Considered a “chronic” blood cancer, nonadvanced SM doesn’t fit the typical idea of cancer. I think that’s part of why many patients with SM reject the “cancer” label.
Considered a “chronic” blood cancer, nonadvanced SM doesn’t fit the typical idea of cancer. I think that’s part of why many patients with SM reject the “cancer” label.
This sweet little girl bonded with me instantly. She is mine, and I am hers.
No one with SM should feel shame or that they “overreacted” for using their EpiPen.
Out of all the medications that I have taken, a birth control pill was the most impactful on my symptoms.
I did not even know grants like this existed. It has been such a huge blessing.
I felt defeated, and hated that I had to apply.
I’d never met anyone else with SM, but I left there with new friends.
I needed something that was safe, but also enjoyable.
The rare disease community is amazing, and strong.
There’s a lot of information at your fingertips that can help you manage your systemic mastocytosis (SM) if you know where to look.