Companion Ambassador
Tara Keith
Tara Keith is a wife, mother, and grandmother who lives life to the fullest. She was diagnosed with indolent systemic mastocytosis (SM) in her late 20s, but only after living with the disease undiagnosed for 10 years. It wasn’t until the cutaneous mastocytosis appeared in 1999 that she was sent for a bone marrow biopsy. “My entire life was a struggle with no information on mastocytosis available,” she said. “I have a story to tell and I’m looking forward to sharing my journey with all of you.” She can be reached at tara_milby@yahoo.com.
From the Ambassador
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Why dental health is so important in systemic mastocytosis
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Coping with an unexpected change in medication
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Rare disease advocacy is taking me to Washington
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Will intermittent fasting boost my health?
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My rare disease means new hobbies, not an end to finding joy
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Can making life harder mean the days get easier? I’m going to find out
