Advocacy

We already beat ourselves up enough over this; we don’t need to hear it from someone else, too.

My ability to travel has not been impacted; I’ve just had to tweak it.

She had to sit on two cushions and a pillow, just like I did when I was flying.

The anxiety that comes with medical trauma is no joke. I am still working on coping mechanisms, and probably will always have to.

I called 45 pharmacies all over the state of Louisiana and no one has my prescription in stock — and no one can order it.

Had the doctor taken my ISM into consideration, he could have prevented a severe osteoporosis diagnosis years later. 

Every day has been difficult, but there is one thing that has never faltered: I will continue to use my voice and advocate for myself.

I had it in my head that if I worked hard physical jobs and kept mentally focused, I could keep going.

If anything I touch on in my writing will help others ease their diagnosis journey, then my time spent writing will be worth it. 

Because of my SM, I cannot donate blood or organs. But I can continue to spread the message that donations save lives.