Advocacy

Living with PTSD due to a rare disease, systemic mastocytosis, has been challenging, but over the years, I’ve learned ways to cope.

After years of living with undiagnosed ISM and osteoporosis, I often wonder how different my life may have been, had I been diagnosed sooner.

I experienced one complication after another during my last two pregnancies, which may have been due to my indolent systemic mastocytosis.