Companion Ambassador
Tara Keith
Tara Keith is a wife, mother, and grandmother who lives life to the fullest. She was diagnosed with indolent systemic mastocytosis (SM) in her late 20s, but only after living with the disease undiagnosed for 10 years. It wasn’t until the cutaneous mastocytosis appeared in 1999 that she was sent for a bone marrow biopsy. “My entire life was a struggle with no information on mastocytosis available,” she said. “I have a story to tell and I’m looking forward to sharing my journey with all of you.” She can be reached at tara_milby@yahoo.com.
From the Ambassador
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I’ve always faked being well. But who was I faking for?
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I’d rather be at home: On (not) leaving the house with SM
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My 2-year journey to getting disability for indolent SM
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A kind stranger gave me new strength. I don’t think it was by chance
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Doing my part to help others: My experience on a patient advisory panel
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My support dog is always there for me. Now it’s my turn to be there for him