Rare disease advocate Dan Lier inspires others with his ‘Rare Disease Playbook’
Motivational speaker and advocate Dan Lier discusses his work helping those with rare diseases find new mindsets after diagnosis.
Motivational speaker and advocate Dan Lier discusses his work helping those with rare diseases find new mindsets after diagnosis.
In SM, overactive mast cells cause anemia in two ways.
In aggressive SM, cancer cells may proliferate at a considerable pace.
Proactively avoiding exposure to pollen requires planning ahead.
Smoldering SM is a slowly progressive subtype of SM.
Navigating a restaurant menu after an SM diagnosis might feel like walking into a minefield — but it doesn’t have to.
Stem cell transplants carry the risk of potentially fatal complications, and are only used when other treatments have been exhausted.
While some patients can tolerate certain NSAIDs, talk to your healthcare team first.
Symptoms of anaphylaxis can progress quickly, and the proactive use of an EpiPen is strongly advised.
SM is considered a cancer because of the abnormal buildup of mast cells that occurs with the disease.